I was diagnosed with a rare eye disease recently named pigmentary glaucoma or pigment dispersion syndrome and I figured I’d write about it a bit as when I was told about it and googling my symptoms, I found very little information. So far what I have read, it’s hereditary, it occurs more often in men, ages 20-40 and with age it disappears! Odd.
My First Episode/ Symptom
Night time is when I noticed PSD, the biggest symptom is rainbows around lights or a glowing haze around lights and pain in the eyes, for me a dull pain. To explain the rainbows around lights heres a diagram of what I see:
http://en.wikipedia.org/wiki/Pigment_dispersion_syndrome I love wikipedias information.
I love this facebook group where people who have this condition share information:
http://www.facebook.com/groups/32863711306/
Things that help me:
• Do not keep looking at the lights to see if it happening!
• allergies in eyes ie. itching, don`t, also do not use allergy drops, use water and an allergy pill.
• Do not have hot hot steamy showers, steam can cause it, I try and keep the steam down in the bathroom but opening the door and shaving my legs seperately.
• Wear sunglasses outside at all times, even the winter.
• Avoid high impact aerobics.
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• I find lighting does make a difference, driving at night, at a place were you are looking at bright lights in a dark room.
~The few things I noticed that definitely seemed to bring it on was once going to a high impact fitness class and driving a long distance due to my bumpy car. I am hoping that I can soon curb this with eye drops.
Drops I have tried:
Combigan– These seem to work well for taking the pressure down, I notice slight burning when using these drops. These are by far my favorite, I currently only take them when having an episode.
Isopto Carpine 1% – WARNING these drops almost gave me a heart attack! Or a panic attack. These drop move your lens, and you instant lose vision for 3-4 hours! I have a habit of putting drops only in one eye just in case, THANK GOD I did this when trying these for the first time. I could not have driven so thank god Mike was here to drive me to the hospital. These drops scared me, BIG TIME.
Azopt Opht Susp – Used with PMS-Brimonidine 0.2%, These I find work to bring pressure down, however, not as good as the combigan. These ones a thick and make vision blurry, I always used this one first and then PMS-Brimonidine 0.2%.
PMS-Brimonidine 0.2% – I used these drops with Azopt Opht Susp, and the combo did help, but I do not use these anymore.
Rumors
• Smoking cannabis will help lower pressure(I have not tried this)
• The condition is all attributed to lighting (I notice showers more lately)
• Stress can cause it (maybe but I cannot get any concrete answers)
Please let me know what your symptoms are, I am posting this so other people with this condition can find information as I could not find anything when I was having this condition.
I’m having the same symptoms Amanda I’m currently seeing halos and rainbows and glares around light my IOP tend to get very high some times I worry a lot because I haven’t been diagnosed yet but I go for iop tests but they still don’t know what’s wrong with me, im kinda depressed rn for real
I was lucky enough to get laser for a while that cured it, but now I am on drops, my sight is still great, do not stress! 🙂
Not sure what that means…my pressure was up in 50’s
Hi I am a 16 year old male and I’ve noticed I can see a halo and rainbow and lights at night or bright lights I been noticing it for about 2 weeks what else could cause this. I have anxiety.
Thanks
I would go to a hospital the next time you have them and tell them to check your eye pressure, it’s considered a medical emergency if you have this, if caught early it can be treated and prevent vision loss:)
Hi,
I’m 50 and have the same problem; only on my right eye when I look at light I could see ring circles and occasionally have dull pain. I visited an ophthalmologist, after numerous tests confirmed that I do not have cataract nor glaucoma but was diagnosed as having dry eye. He said that my eyes are not receiving enough oxygen and this causes dryness of the eye plus my eye cells are not reproducing. He recommended me to use saline hypertonic solution 3% eye drops 4 times a day. I have been using it and still waiting to see an improvement.
Dev
Hi Dev, what you describe, ie a dull pain and circles is my exact symptoms. Mine was explained that my pigment or eye color flakes off, and drains, when the drains get clogged, it increases my eye pressure and causes the attacks, pain and halos. I worry that there is not enough information out there to properly diagnose this condition. PS I do not technically have glaucoma yet, I have pigment dispersion. Thanks for the comment!